Although the NF2 Crew is an online NF2 support community, we do meet locally in some cities for support (medical) meetings as well. Below we list a few of those local support groups. If you have a group that you would like to list here, a support group with more then one person with NF2 in it, please let us know about it.   Thank you!

This support group meets approximately every three months at the center for Hearing and Communication in Manhattan. We share experiences, offer advice and support, and socialize.

If you are interested in joining our group, or attending one of our meetings, please visit our website at http://nf2nycsupport.org/

 

Michigan's NF2 Support Group reaches out to people in the entire state, western Ontario, and neighboring areas.  Some have been dealing with the disorder for decades, others have been diagnosed more recently. Together we represent a broad background of experiences and knowledge about treatment options, medical center capabilities, and coping strategies. Valuable information is ours from our own people who care and understand.

 

Captioning is provided on a large screen for all meetings.  Communication via the internet, phone, and snail mail are used to keep everyone "in the loop" ... especially useful for those unable to attend meetings or in need of information. There are opportunities to learn from leading medical authorities and researchers who speak at local and national meetings. We welcome patients' families to our group.

 

Although we are independent of other organizations, members are encouraged to support the efforts of NF Inc., Children's Tumor Foundation, and the Acoustic Neuroma Association.  All provide important services, further research, and give us an opportunity to increase awareness of NF2. 

 

If you or someone you know would like to be added to our mailing list please contact --

 

Dorothy Barnier, Facilitator

Michigan NF2 Support Group

 

gbarnier@mi.rr.com

734 525-5581