One of the things one does to live with NF2 is assemble a list of the best resources of information available for treatment, doctors, research and more. To help your information-gathering efforts, here is a list of websites we've assembled by members of the NF2 Crew. This list is always growing and we would love to hear about sites you recommend.
NOTICE: These sites are worthwhile in our opinion. The NF2 Crew is NOT an authoritative medical source.
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Acoustic Neuroma Brazil http://www.neurinoma.com.br/index1.html
Central Nervous System http://www.besthealth.com/besthealth/bodyguide/reftext/ html/nerv_sys_fin.html
Acoustic Neuroma http://en.wikipedia.org/wiki/Acoustic_neuroma
Brain Tumor Centers http://www.virtualtrials.com/btcenters.cfm
Brain Tumor Society http://www.tbts.org/GeneralMenu/
National Brain Tumor Assoc http://www.braintumor.org/GeneralMenu/
Acoustic Neuroma Assoc of Canada http://www.anac.ca/
Acoustic Neuroma Assoc of US http://www.anausa.org/
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CapTel http://www.(back to top)captionedtelephone.com/
AFB http://www.afb.org/Section.asp?SectionID=4&DocumentID= 1452
Silent Call Communications http://www.silentcall.com/
Harris Communications http://harriscomm.com/
Tactaid http://www.tactaid.com/
Ultratec http://www.ultratec.com/
NFSS Communications http://www.nfss.com/
Soundbytes http://www.soundbytes.com/
Hearing Aid Telephone Interconnect Systems (HATIS) http://www.hatis.com/
ATT Relay Services http://relayservices.att.com/
ATT Internet Relay http://www.relaycall.com/national/relay.html
MCI Ip Relay http://www.ip-relay.com/
Sprint Relay Online https://www.sprintip.com/index.jsp
Cindy H http://thingsfallapart-cindy.(back to top)blogspot.com/
Olivia http://fabulousrunningmommy.blogspot.com/
Johnna http://scarlapetto.blogspot.com/
K.C. http://kzcz.blogspot.com/
Rebecca Dufek http://diverbeck.blogspot.com/
Holly Alonzo http://hollyalonzo.com
CART Information http://www.cartinfo.org/(back to top)
Insight Cinema http://www.insightcinema.org/
Captioned Media Program http://www.dcmp.org/Default.aspx? AspxAutoDetectCookieSupport=1
WGBH Media Access Group http://main.wgbh.org/wgbh/pages/mag/
National Captioning Institute http://www.ncicap.org
ABI Clinics http://www.cochlearamericas.(back to top)com/Support/39.asp
House Ear Institute http://www.hei.org/
Cochlear Implant Info http://www.allhear.com/
ASL Dictionary http://www.aslpro.com/cgi-(back to top)bin/aslpro/aslpro.cgi
Pepnet http://www.pepnet.org/
Registry of Interpreters for the Deaf http://www.rid.org/
Virtual Tour of the Ear http://ctl.augie.edu/perry/ar/ar.htm
National Association of the Deaf http://www.nad.org/site/pp.asp?c=foINKQMBF&b=91587
Independent Hearing Aid Information http://www.earinfo.com/
About.Com Deaf Resources http://deafness.about.com/
National Cued Speech Association http://www.cuedspeech.org/
ASL Info http://www.aslinfo.com/
DryEyeInfo.Org http://www.dryeyeinfo.org/(back to top)
The Dry Eye Shop http://www.dryeyeshop.com/
Surviving Dry Eye http://www.dryeyepain.com/index.htm
Dry Eye Yellow Pages http://www.dryeyeyellowpages.com/
Dry Eye Digest http://www.dryeyedigest.blogspot.com/
Dry Eye Talk http://www.dryeyezone.com/talk/
The Dry Eye Zone http://www.dryeyezone.com/
Prescription Assistance http://www.pparx.org/(back to top)
Prescription Assistance http://www.needymeds.org/
Rebecca's Fundraising Page http://www.firstgiving.com/(back to top)myquest4nf
Debbie & Barb's Bike4NF http://www.firstgiving.com/bike4nf
Olivia Hernandez's Fundraising Page http://www.active.com/donate/nflongbeach2008/OHernan4
Amber's Fundraising Page http://www.active.com/donate/nfdisney2009/The-A-Team
Run4NF http://www.run4nf.org/
Hospital Gown Warmer http://healthcarehacks.com/new-high-tech-hospital-gowns-keep-patients-warm
Drug Interactions http://www.drugdigest.org/(back to top)wps/portal/ddigest
AskaPatient.com http://www.askapatient.com/index.asp
Michigan Ear Institute http://www.michiganear.com/index_real.html
MedicineNet http://www.medicinenet.com/script/main/hp.asp
Center Watch http://www.centerwatch.com/
American Tinnitus Association http://www.ata.org/
How to Read an Audiogram http://www.earinfo.com/how-to-read-a-hearing-aid-test/
Health Link USA http://www.healthlinkusa.com/
Doctor Page http://doctorpage.com/
American Medical Association http://www.ama-assn.org/
Consumer Guides for Getting & Keeping Insurance http://www.(back to top)healthinsuranceinfo.net/
State Children's Health Insurance Programs (SCHIP) http://www.cms.hhs.gov/
National Org of Social Security Claimants' Representatives http://www.nosscr.org
Low Income Individuals/Families; Persons with Disabilities http://www.cms.hhs.gov/
Persons with Total Disability; Senior Citizens http://www.medicare.gov/
Cover the Uninsured http://covertheuninsured.org/
Children Without Health Insurance http://www.coveringkids.org/
Consumer's Guide to Getting & Keeping Health Insurance http://www.healthinsuranceinfo.net/
Disabled Dealer http://www.disableddealer.(back to top)com/
DisabilityInfo.Gov http://www.disabilityinfo.gov/digov-public/public/ DisplayPage.do?parentFolderId= 500
National Council on Disabilitiy http://www.ncd.gov/
Job Accommodation Network: ADA http://www.jan.wvu.edu/
Brazilian Neurofibromatosis Assoc http://www.nf.org.br/(back to top)
Tinnitus http://www.tinnitus.org/home/frame/THC1.htm
NINDS Neurofibromatosis Information Page http://www.ninds.nih.gov/disorders/neurofibromatosis/ neurofibromatosis.htm
Facts to Know About NF2 http://www.anarchive.org/nf2.htm
Texas NF Assoc http://www.texasnf.org/
Interactive Cranial Nerve Chart http://www.gwc.maricopa.edu/class/bio201/cn/cranial.htm
Brachial Plexus http://www.burrill.demon.co.uk/meddoc/braplex.html
Spine & Peripheral Nerve http://neurosurgery.mgh.harvard.edu/Spine/default.htm
Malignant Brain Tumors & Neuro-Oncology Resources http://neurosurgery.mgh.harvard.edu/nonc-hp.htm
Associació Catalan de Neurofibromatosis http://www.acnefi.com/castella/gamhome.htm
Neurofibromatosis, Inc http://www.nfinc.org
Children's Tumor Foundation http://www.ctf.org
Neurofibomatosis Association UK http://www.nfauk.org/
NF News http://www.ctf.org/Living-(back to top)with-NF/newsletters.html
NF Ink Online http://www.nfinc.org/newsletter.shtml
Flutterby - Advocure NF2 Inc. http://www.advocurenf2.org/05_newsletter.html
Univ of Pittsburg Gamma Knife http://www.neurosurgery.pitt.(back to top)edu/imageguided/gammaknife/ index.html
Cleveland Clinic Stereotactic Radiosurgery http://my.clevelandclinic.org/services/radiation_ oncology/default.aspx
San Diego Gamma Knife Center http://www.sdgkc.com
Gamma Knife in Michigan http://www.midmichigan.org/consumer/page.asp?OrgID= BF4ECA07F3B4416DB435BED5F9B068 5A&id= 98164C11EAB6476A9A1B995D5D0BEE EF&s=4&sName=0
NEMC: Peacock Information http://www.pslgroup.com/dg/2286a.htm
IRSA http://www.irsa.org/
Acoustic Neuroma Radiosurgeons http://www.anarchive.org/radiosurgeons.htm
NeurofibromatosisResearch.com(\back to top)http://www. neurofibromatosisresearch.com/
Clinical Trials for NF2 http://www.ctf.org/Living-with-NF/nf2-trials-a-studies. html
Advocure http://www.advocurenf2.org/
Dr. Maruta's Transcript http://www.nfinc.org/marutats.pdf
Dept of Defense Neurofibromatosis Research Awards http://cdmrp.army.mil/pubs/press/02nfrpresearchawards.htm
Congressionally Directed Medical Research Programs http://cdmrp.army.mil/nfrp/
Denise Terrill Charity Classics http://www.deniseterrillclassics.com/DTC/ Home.html
Wikipedia http://en.wikipedia.org/wiki/(back to top)Schwannomatosis
What Is Schwannomatosis? http://www.nfincne.org/uploads/documents/ WhatIsSchwannomatosis.pdf
Dogs for the Deaf http://www.dogsforthedeaf.(back to top)org/
Susquehanna Service Dogs http://www.keystonehumanservices.org/ssd/ ssd.php
International Assoc of Assistance Dog Programs (IAADP) http://www.iaadp.org/
About.Com Hearing Dogs http://deafness.about.com/od/hearingdogs/Hearing_Dogs.htm
Paws with a Cause http://www.pawswithacause.org/
Fingerspelling http://asl.ms/
American Sign Language Browser http://commtechlab.msu.edu/sites/aslweb/browser.htm
ASL Video Dictionary http://www.aslpro.com/cgi-bin/aslpro/aslpro.cgi
BCNF Symposium Report, 2009 http://bcnf.bc.ca/linked/NF2_Information_Day_June_09.pdf(back to top)
Ped-Onc Resource Center http://www.acor.org/ped-onc/(back to top)resources/airlineflights.html
National Patient Travel Helpline http://www.patienttravel.org/
Angel Flight, Inc http://www.angelflight.com/