Neurofibromatosis Type 2 Support
Links
One of the things one does to live with NF2 is assemble a list of the best resources of information available for treatment, doctors, research and more. To help your information-gathering efforts, here is a list of websites we've assembled by members of the NF2 Crew.  This list is always growing and we would love to hear about sites you recommend.

NOTICE: These sites are worthwhile in our opinion. The NF2 Crew is NOT an authoritative medical source.
If you have a link you would like to share on this page, please let us know about it.  Thank you!
 

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 Acoustic Neuroma/Brain Tumor  
Acoustic Neuroma Brazil    http://www.neurinoma.com.br/index1.html
Central Nervous System    http://www.besthealth.com/besthealth/bodyguide/reftext/html/nerv_sys_fin.html
Acoustic Neuroma    http://en.wikipedia.org/wiki/Acoustic_neuroma
Brain Tumor Centers    http://www.virtualtrials.com/btcenters.cfm
Brain Tumor Society    http://www.tbts.org/GeneralMenu/                                           
National Brain Tumor Assoc    http://www.braintumor.org/GeneralMenu/
Acoustic Neuroma Assoc of Canada    http://www.anac.ca/                                                                
Acoustic Neuroma Assoc of US    http://www.anausa.org/

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 Assistive Technology 
CapTel    http://www.captionedtelephone.com/
AFB    http://www.afb.org/Section.asp?SectionID=4&DocumentID=1452    
Silent Call Communications    http://www.silentcall.com/    
Harris Communications    http://harriscomm.com/    
Tactaid    http://www.tactaid.com/   
Ultratec    http://www.ultratec.com/
NFSS Communications    http://www.nfss.com/  
Soundbytes    http://www.soundbytes.com/  
Hearing Aid Telephone Interconnect Systems (HATIS)    http://www.hatis.com/   
ATT Relay Services    http://relayservices.att.com/
ATT Internet Relay    http://www.relaycall.com/national/relay.html 
MCI Ip Relay    http://www.ip-relay.com/ 
Sprint Relay Online    https://www.sprintip.com/index.jsp 

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 Blogs 
Cindy H    http://thingsfallapart-cindy.blogspot.com/     
Olivia    http://fabulousrunningmommy.blogspot.com/
Johnna    http://scarlapetto.blogspot.com/    
K.C.    http://kzcz.blogspot.com/                
Rebecca Dufek    http://diverbeck.blogspot.com/
Holly Alonzo   http://hollyalonzo.com
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 Captioning 
CART Information    http://www.cartinfo.org/  
Insight Cinema    http://www.insightcinema.org/
Captioned Media Program    http://www.dcmp.org/Default.aspx?AspxAutoDetectCookieSupport=1
WGBH Media Access Group    http://main.wgbh.org/wgbh/pages/mag/             
National Captioning Institute    http://www.ncicap.org

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 Cochlear & Auditory Brainstem Implants 
ABI Clinics    http://www.cochlearamericas.com/Support/39.asp                               
House Ear Institute    http://www.hei.org/   
Cochlear Implant Info    http://www.allhear.com/    

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 Deaf Resources 
ASL Dictionary    http://www.aslpro.com/cgi-bin/aslpro/aslpro.cgi 
Pepnet    http://www.pepnet.org/ 
Registry of Interpreters for the Deaf    http://www.rid.org/     
Virtual Tour of the Ear    http://ctl.augie.edu/perry/ar/ar.htm   
National Association of the Deaf    http://www.nad.org/site/pp.asp?c=foINKQMBF&b=91587        
Independent Hearing Aid Information    http://www.earinfo.com/ 
About.Com Deaf Resources    http://deafness.about.com/    
National Cued Speech Association    http://www.cuedspeech.org/
ASL Info    http://www.aslinfo.com/ 

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 Dry Eyes 
DryEyeInfo.Org    http://www.dryeyeinfo.org/
The Dry Eye Shop    http://www.dryeyeshop.com/ 
Surviving Dry Eye    http://www.dryeyepain.com/index.htm
Dry Eye Yellow Pages    http://www.dryeyeyellowpages.com/
Dry Eye Digest    http://www.dryeyedigest.blogspot.com/
Dry Eye Talk    http://www.dryeyezone.com/talk/
The Dry Eye Zone    http://www.dryeyezone.com/

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 Financial Assistance 
Prescription Assistance   http://www.pparx.org/
Prescription Assistance   http://www.needymeds.org/

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Fundraising
Rebecca's Fundraising Page    http://www.firstgiving.com/myquest4nf
Debbie & Barb's Bike4NF    http://www.firstgiving.com/bike4nf    
Olivia Hernandez's Fundraising Page    http://www.active.com/donate/nflongbeach2008/OHernan4 
Amber's Fundraising Page    http://www.active.com/donate/nfdisney2009/The-A-Team
Run4NF    http://www.run4nf.org/  

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General Medical Resources
Hospital Gown Warmer  http://healthcarehacks.com/new-high-tech-hospital-gowns-keep-patients-warm
Drug Interactions    http://www.drugdigest.org/wps/portal/ddigest      
AskaPatient.com    http://www.askapatient.com/index.asp           
Michigan Ear Institute    http://www.michiganear.com/index_real.html           
MedicineNet    http://www.medicinenet.com/script/main/hp.asp                          
Center Watch    http://www.centerwatch.com/                                                                
American Tinnitus Association    http://www.ata.org/
How to Read an Audiogram    http://www.earinfo.com/how-to-read-a-hearing-aid-test/         
Health Link USA    http://www.healthlinkusa.com/ 
Doctor Page    http://doctorpage.com/        
American Medical Association    http://www.ama-assn.org/       

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 Insurance Links 
Consumer Guides for Getting & Keeping Insurance    http://www.healthinsuranceinfo.net/                
State Children's Health Insurance Programs (SCHIP)    http://www.cms.hhs.gov/    
National Org of Social Security Claimants' Representatives    http://www.nosscr.org
Low Income Individuals/Families; Persons with Disabilities    http://www.cms.hhs.gov/ 
Persons with Total Disability; Senior Citizens    http://www.medicare.gov/              
Cover the Uninsured    http://covertheuninsured.org/ 
Children Without Health Insurance    http://www.coveringkids.org/   
Consumer's Guide to Getting & Keeping Health Insurance    http://www.healthinsuranceinfo.net/

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 Living With Disabilities    
Disabled Dealer    http://www.disableddealer.com/     
DisabilityInfo.Gov    http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=500          
National Council on Disabilitiy    http://www.ncd.gov/  
Job Accommodation Network: ADA    http://www.jan.wvu.edu/

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 Neurofibromatosis 
Brazilian Neurofibromatosis Assoc    http://www.nf.org.br/    
Tinnitus    http://www.tinnitus.org/home/frame/THC1.htm       
NINDS Neurofibromatosis Information Page    http://www.ninds.nih.gov/disorders/neurofibromatosis/neurofibromatosis.htm
Facts to Know About NF2    http://www.anarchive.org/nf2.htm 
Texas NF Assoc    http://www.texasnf.org/ 
Interactive Cranial Nerve Chart    http://www.gwc.maricopa.edu/class/bio201/cn/cranial.htm 
Brachial Plexus    http://www.burrill.demon.co.uk/meddoc/braplex.html             
Spine & Peripheral Nerve    http://neurosurgery.mgh.harvard.edu/Spine/default.htm  
Malignant Brain Tumors & Neuro-Oncology Resources    http://neurosurgery.mgh.harvard.edu/nonc-hp.htm
Associació Catalan de Neurofibromatosis    http://www.acnefi.com/castella/gamhome.htm 
Neurofibromatosis, Inc    http://www.nfinc.org
Children's Tumor Foundation    http://www.ctf.org
Neurofibomatosis Association UK    http://www.nfauk.org/

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 Newsletters 
NF News    http://www.ctf.org/Living-with-NF/newsletters.html        
NF Ink Online    http://www.nfinc.org/newsletter.shtml
Flutterby - Advocure NF2 Inc.  http://www.advocurenf2.org/05_newsletter.html

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 Radiosurgery  
Univ of Pittsburg Gamma Knife    http://www.neurosurgery.pitt.edu/imageguided/gammaknife/index.html     
Cleveland Clinic Stereotactic  Radiosurgery    http://my.clevelandclinic.org/services/radiation_oncology/default.aspx
San Diego Gamma Knife Center    http://www.sdgkc.com
Gamma Knife in Michigan http://www.midmichigan.org/consumer/page.asp?OrgID=BF4ECA07F3B4416DB435BED5F9B0685A&id=98164C11EAB6476A9A1B995D5D0BEEEF&s=4&sName=0
NEMC: Peacock Information    http://www.pslgroup.com/dg/2286a.htm 
IRSA    http://www.irsa.org/   
Acoustic Neuroma Radiosurgeons    http://www.anarchive.org/radiosurgeons.htm

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 Research 
NeurofibromatosisResearch.com    http://www.neurofibromatosisresearch.com/     
Clinical Trials for NF2    http://www.ctf.org/Living-with-NF/nf2-trials-a-studies.html  
Advocure    http://www.advocurenf2.org/               
Dr. Maruta's Transcript    http://www.nfinc.org/marutats.pdf
Dept of Defense Neurofibromatosis Research Awards    http://cdmrp.army.mil/pubs/press/02nfrpresearchawards.htm 
Congressionally Directed Medical Research Programs    http://cdmrp.army.mil/nfrp/  
Denise Terrill Charity Classics    http://www.deniseterrillclassics.com/DTC/Home.html

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 Service Dog Programs 
Dogs for the Deaf    http://www.dogsforthedeaf.org/    
Susquehanna Service Dogs    http://www.keystonehumanservices.org/ssd/ssd.php                
International Assoc of Assistance Dog Programs (IAADP)    http://www.iaadp.org/   
About.Com Hearing Dogs    http://deafness.about.com/od/hearingdogs/Hearing_Dogs.htm       
Paws with a Cause    http://www.pawswithacause.org/ 

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 Sign Language  
Fingerspelling    http://asl.ms/           
American Sign Language Browser    http://commtechlab.msu.edu/sites/aslweb/browser.htm     
ASL Video Dictionary  http://www.aslpro.com/cgi-bin/aslpro/aslpro.cgi

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 Symposium Trancripts  
BCNF Symposium Report, 2009  http://bcnf.bc.ca/linked/NF2_Information_Day_June_09.pdf

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 Travel 
Ped-Onc Resource Center    http://www.acor.org/ped-onc/resources/airlineflights.html 
National Patient Travel Helpline    http://www.patienttravel.org/
Angel Flight, Inc    http://www.angelflight.com/

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