dont know if my last message went thru , my son jarrett age 28 passed away on 6/14 2010 from complacations of nf2 he fought a long fight never complain he worked took care of his 3 year old son my son belined in jesus, hes happy now free of pain and nf2 , he will be missed by all but we know hes in a better place

I do not have NF2 myself but my daughter Sarah does. She is 34 this year married with two young daughters. What an inspiration she has been. She was diagnosed with this about 2 years ago. She has had two major ops and radiosurgery. She still have three tumours which are small so they are monitoring them. She is so strong and amazing who is loved dearly.

HI NF2 Crew! In October 2009 I was diagnosed with this Disease. I had 1 tumor removed in Dec. 2009 & had a cerebral hemorhage 4 days later. Its been a long road and a journey I don't want to go through alone for I know their are more surgeries down the road. Im def in 1 ear and will be completely def when the other tumor is removed. My family & I are in the process of taking sign language classes. NF2 is a disease that requires much patience and a strong faith. I live in a small community where their isn't much education & understanding of this disease. I hope to start awareness around me. I just need to know how to get started.

WOW! been to long since i looked at the main page! VERY cool! any newbies-grab a crew chair n chat! Its a wonderful extended nf2 fam! =)

I am Kelly Babbs brother-in-law thanks to all of you that were here friends. She loved you. Kelly's family has appreciated the calls flowers and e mails.

My daughter has NF2 and now is expecting her first child in 11 weeks. She doesn't want to know if her baby has NF2. But as a mom i have always felt guilty as she don't have a normal life she's in pain and headaches and we can't find a Dr. in Wis. that will help her.

HAS ANYONE TRIED NOVALIC SHAPED BEAM SURGERY FOR ANY OF THEIR NF2 TUMORS?IF SO HOW DID YOU DO WITH IT AND WHAT AREA OF YOUR BODY DID YOU HAVE DONE WITH IT?? I WOULD APPRECIATE ANY INFO. THANKS CHARLIE

I am checking this out, have never really thought about other peolpe with NF2... I am 28 years old from Iceland and I am as far as I know the only Icelander with this disorder. I would really like to hear from other persons about how NF 2 has changed, or not, their lives. My self have had very dramastic changes over the 13 years. Please send me an email, it is of course confidental. I am also trying to register in your talk group. Regards Dotti

Hey im 13 years old and i have nf2

I HAVE 2 DGHTRS AGE 17 AND 13 WHO HAVE JUST BEEN DX W/ NF II. LOOKING FOR SOMEONE IN THEIR AGE GROUP TO TALK WITH. AND ALSO, SOME PARENT SUPPORT.