Neurofibromatosis Type 2 Support
Doctors & Clinics
    

The following is a list of NF2 Doctors and Clinics that have been mentioned by at least one Crew member as having a verifiable reputations as experts.  

PLEASE NOTE: Being listed here is an acknowledgment or endorsement, and not necessarily a recommendation. This is provided purely as a research tool, and absence or presence on this list is not a rating of their services.

If you would like to see a doctor or clinic added here, if an address on this list has changed, please let us know. Click on the below button and fill out the form.  Thank you!
Alabama
Alaska
Arizona
Arkansas
California
Colorado
Connecticut
Delaware
Florida
Georgia
Hawaii
Idaho
Illinois
Indiana
Iowa
Kansas
Kentucky
Louisiana      
Maine
Maryland
Massachusetts
Michigan
Minnesota
Mississippi
Missouri
Montana
Nebraska
Nevada
New Hampshire
New Jersey
New Mexico
New York
North Carolina
North Dakota
Ohio
Oklahoma
Oregon
Pennsylvania
Rhode Island
South Carolina
South Dakota
Tennessee
Texas
Utah
Vermont
Virginia
Washington
West Virginia
Wisconsin
Wyoming
Other countries and provinces:  (Brazil), (Canada), (Mexico)
  
----------------------------------------------------------------------------------------------------
 Alabama  
 
   Doctors
   Clinics
Winfield S. Fisher III, MD
Professor, Department of Surgery
Division of Neurosurgery
The Kirklin Clinic
2000 6th Avenue South
Birmingham, AL 35233-0271
(205) 934-1430

Dr. Mark Hadley
UAB Hospital 1802 6th Ave. South
Birmingham, AL 35249
Phone 205-934-9999

University of South Alabama
Gulf Coast Region - NF Clinic
307 University Blvd.
CCCB Room 214 - Medical Genetics
Mobile, AL 36688
Phone: (251) 460-7500
Fax: (334) 460-7684






(back to top)

 
 Alaska  

 
   Arizona  

 
   Doctors    Clinics
Barrow Neurosurgical Associates, LTD.
2910 North Third Avenue
Phoenix, Arizona 85013
(602)406-3181
http://www.thebni.com/home.asp
http://www.bnaneuro.net/

Arizona Otologic Associates, LTD.
C. Philip Daspit, M.D., F.A.C.S.
Otology/Neurotology
Ear, Facial Nerve and Skull Base
222 West Thomas Road Suite 114
Phoenix, Arizona 85013
(602)279-5444

Barrow Neurologicael Institut
St. Joseph’s Hospital & Medical Center
Mercy Health Care Arizona
350 West Thomas Road
Phoenix, AZ 85013-4496
Phone: (602) 406-3078
Fax: (602) 406-7197
Loretta Wu: genetic counselor/coordinator






(back to top)

 
 Arkansas   

 California  

 
   Doctors     Clinic
DrDr.. John R. Adler
R-155 Stanford University Medical Center
300 Pasteur Dr.
Stanford, CA 94305
415 723-5573 or nurse at 723-4720
adler@flamingo.stanford.edu

Samuel Assam, MD
Neurosurgical Medical Clinic, Inc.
501 Washington, Suite 700
San Diego, CA 92103
PH: (619) 297-4481

Derald E. Brackmann, MD
House Ear Institute
2100 West Third Street
Los Angeles, CA 90057
PH: (213) 483-9930
FAX: (213) 483-8730
EMAIL: dbrackmann@hei.org

Steve Otto, Research Audiologist
House Ear Institute
2100 West Third Street
Los Angeles, CA 90057
EMAIL: sotto@hei.org

Dr. Michael S.B. Edwards
Clinical Professor
Department of Neurosurgery and Pediatrics
Lucile Packard Children's Hospital
Stanford University Medical Center
725 Welch Road
Palo Alto, CA 94304
(650) 724-4270
e-mail edwards9@stanford.edu

Christopher Duma, MD, FACS
351 Hospital Road, Suite 401
Newport Beach, CA 92663
Phone:  949.642.678
Fax:  949.642.483
Email:   drduma@cduma.com
Website: http://www.cduma.com/index.html

Dr. William Loudon, M.D., PhD
Children's Hospital of Orange County
West Coast Pediatric Neurosurgical Associates
455 S. Main
Orange, CA 92868
Phone:  714-289-4151
fax:  714-997-3758

Griffith R. Harsh IV, M.D.

Department of NeuroSurgery
Stanford University Medical Center
100 Pasteur Drive
Stanford, CA 94305
PH: (650) 723-2013
FAX: (650) 723-7813
EMAIL: gharsh@leland.stanford.edu

Dr, Ralph Nelson of the House Ear Clinic
2200 West Third Street,
Los Angeles, CA 90057
213- 484-2642 (TTY)

William Devor, MD
Kaiser Permanente
4647 Zion Avenue
San Diego, CA 92120
Specialty: Neurology
PH: (619) 528-0061

Joseph Roberson, MD
California Ear Institute At Stanford
801 Welch Road
Palo Alto, CA 94304
PH: (415) 494-1000

Stephen L. Saltzman, MD
Kaiser Permanente
4647 Zion Avenue
San Diego, CA 92120
PH: (619) 528-2597
Email: ssaltzman@kpscal.org

William H. Slattery III, M.D.
Associate, House Ear Clinic
2100 West 3rd Street
Los Angeles, CA 90057
PH: (213) 483-9930
FAX (213) 484-5900
Email: wslattery@hei.org

Samuel R. Whitaker, MD
8737 Beverly Blvd Suite 103
Los Angeles, CA 90048-1828
PH: (310) 854-4452
Fax: (310) 854-6745

Second address:
Pacific Neuroscience Center
10900 Warner Ave Suite 101-B
Fountain Valley, CA 92708
PH: (714) 964-1506 SRW
Fax: (714) 964-3615

Cedars-Sinai Birth Defect Center
NF Clinic
Suite 1001
444 S. San Vincente Blvd.
Los Angeles, CA 90048
Phone: (310) 423-9914 or (310) 967-1644
Fax: (213) 651-5381

Children's Hospital Los Angeles
Department of Neurology, MS# 82
4650 Sunset Blvd.
Los Angeles, CA 90027
Phone - 323-669-2471
Fax - 323-667-2019
trosser@chla.usc.edu
NF clinic hours of operation:
Fridays, 8:30 a.m. - 12 p.m.



























































































(back to top)


 Colorado 
 

  
 Connecticut

 
   Doctors  
Dr. William Padula
Neuro-Optometric Rehab. Assoc.
PO BOX 1408
Guilford, Connecticut 06437

Dr. Charles Duncan M.D.
Professor and chief, Pediatric Neurosurgery
Yale University school of Medicine
Department of Neurosurgery
333 cedar street
New Haven Conneticut 06520
1-203-785-2809
Email: Charles.Duncan@Yale.edu

Dr. John Strugar,M.D.
Yale university school of Medicine
Department of Neurosurgery
333 Cedar Street
New Haven, Conneticut 06520
1-203-785-2807 

 
(back to top)

     
 Delaware  

 
 Florida 

 
   Doctors    Clinics
Dr. Harry R. van Loveren
Harbourside Medical Tower
4 Columbia Dr., Suite 730
Tampa, Florida  33606
Office: 813-259-0965
hvanlove@hsc.usf.edu

William A. Friedman, MD
University Physicians
Box J-354
J. Hillis Miller Health Center
Shands Hospital
Gainesville, FL 32610
Specialty: Neurosurgery
PH:(352) 392-3561

Jacques Morcos, M.D. FRCS
Dept of Neurological Surgery
Lois Pope LIFE Center
1095 NW 14th Terrace, (D4-6)
Miami, FL 33136

NF Clinic North Broward Hospital
Dr. Mslew Baue
Director Fort Lauderdale, FL


















 (back to top)

 
 Georgia  

 
  Hawaii  

 
  Idaho  

 
 Illinois  

 
   Doctors  
Douglas Anderson
Neurological Surgery
Loyola Outpatient Center
2160 South First Ave, Bldg 105
Maywood, IL 60153
Phone: 708-216-3835 (appts) NF2
Specialist in pediatric neurosurgery; also sees adults
Contact: Maureen (nurse), direct line 708-216-8235

Andrew J. Fishman, MD
Departments of Otolaryngology & Neurosurgery
Northwestern University
Feinberg School of Medicine
Chicago, Il USA
ajfishman@mac.com
http://www.andrewfishmanmd.com
Phone: 312-695-818

Dr James Tonsgard
Director Neurofibromatosis Program
University of Chicago Hospitals and Clinics
5841 S Maryland Ave
Chicago, IL

 
(back to top)

 
Indiana 

 
   Doctors  
Micheal B. Pritz, M.D., Pf.D.
Neurological Surgery
Director, cerebrovascular & skull base surgery
545 Barnhill Drive EM 139
Indianapolis, IN 46202-5124
Ph:  317-274-5728
appointments:  674-252-7795
Fax:  317-274-7351

Richard A., Burgett, M.D., F.A.C.S.
702 Rotary Circle
Indianapolis, IN 46202
Phone VIM: 317-805-4553
Ph:  317-817-1976
Fax:  317-274-4176 

Dr. Karen Roos

Wishard Hospital
Indianapolis, IN
Specialty: neurology

Richard T. Miyamoto, MD.
Riley Hospital
702 Barnhill Dr.
Room 0860
Indianapolis, IN 46202-5000
PH: 317-274-3556
If no answer: 317-274-5000
FAX:  317-2785101
Specialty: Adult and Pediatric Otology (ENT)
Neurology - Skull Base Surgery
Hearing and Balance Disorders

Robert D. Yee, MD.
Merrill Grayson Professor of Ophthalmology
Director of neuro-ophthalmology service
200W. 203rd Street, Ste. 2200
Indianapolis, IN 46290
PH: 877-224-8393
Fax:  317-278-5101

Thomas C. Witt, M.D.
Neurnoogical Surgery
545 Barnhill Drive EM 139
Indianapolis, IN 46202-5124
ph:  317274-8118
317-274-7351

 
(back to top)

 
 Iowa  

 
   Doctors  
Bruce J. Gantz, MD
University of Iowa Hospitals & Clinics
Otolaryngology Department/Neurotology
200 Hawkins Drive
Iowa City, IA 52242
Phone: (319) 353-7042

 
(back to top)

 
 Kansas  

 
 Kentucky  

 
 Louisiana   

 
 Maine  

 
 Maryland  

 
  Doctors  
Director: Dr. Jaishri Blakeley, Adult Neurologist
Pediatric Neurologist: Dr. Lori Jordan
Neurosurgeon: Dr. Allan Belzberg

Johns Hopkins Comprehensive NF Center
Johns Hopkins Hospital 600 N. Wolfe St., Phipps 117
Baltimore, MD 21287
Phone: 410-614-3853
Fax: 410-502-2797
NF1, NF2, Schwannomatosis

Dr. Alessandro Olivi
The Johns Hopkins Hospital
Department of Neurosurgery
Meyer 9-100
600 N. Wolfe Street
Baltimore, MD 21287 Phone: 410-955-0703
Fax: 410-614-9877t

Dr. Lawrence Kleinberg
401 N. Broadway, Weinberg 1469
Baltimore, MD 21231-2410

 
(back to top)

 
 Massachusetts  

 
   Doctors  
Robert Martuza, M.D.
Higgins Professor of Neurosurgery
Chief, Neurosurgery Service
Massachusetts General Hospital
55 Fruit Street
Boston, MA 02114
PH:(617) 726-8581

Scott Plotkin, M.D
Pappas Center for Neuro-Oncology
Massachusetts General Hospital
Harvard Medical School
55 Fruit Street, Yawkey 9E
Boston, MA 02114
tel: 617-724-8770
fax: 617-724-8769
splotkin@partners.org

Fred G. Barker II, MD
Massachusetts General Hospital
Brain Tumor Center
Cox 315
Fruit Street
Boston, MA 02114
PH: (617) 724-8772
FAX: (617) 724-8769
EMAIL: barker@helix.harvard.mgh.edu

Micheal J. McKenna, MD
Mass Eye and Ear Infirmary
243 Charles Street
Boston, MA. 02114
PH: (617) 573-3672
FAX: (617) 573-3914

Dr. Allan Thornton
Cox-3, Dept. of Radiation Oncology
Proton Beam Expertise
Mass. General
Fruit St.
Boston, MA 02114
PH: 617-724-1156

 
(back to  top)

 
 Michigan    

 
   Doctors  
B. Gregory Thompson, MD
Professor, Dept. of Neurosurgery, Univ. of Mich.
Brain Tumor Specialty
3552 Taubman Health Care Center
1500 E. Medical Center Drive
Ann Arbor, MI 48109-5338
(734) 936-7493

Jeffrey  Innis, MD, PhD. 
Professor of Pediatrics and Medical Genetics
Univ. of Michigan Health Systems
1500 E. Medical Center Drive
Ann Arbor, MI 48109
(734) 936-4000

Steven A. Telian, M.D.

Professor, Dept. of Otolaryngology (Univ.of Mich.)
Director, Division of Otology, Neurotology and Skull Base Surgery
Taubman Health Care Center - Floor 1, Reception: A
1500 East Medical Center Drive
Ann Arbor, MI 48109-5312
 
(734) 763-6510.

Lynda Jun-San Yang, M.D., Ph.D.

Assistant Professor, Dept. of Neurosurgery (Univ. of Mich.)
Spinal Tumors
Taubman Health Care Center - Floor 2 Reception G
Ann Arbor, MI 48109-5338
(734) 936-7010


Wayne T. Cornblath, M.D.
(Univ. of Michigan)
Neuro-Ophthalmology
Professor, Ophthalmology and Visual Sciences
Professor, Dept. of Neurology
Kellogg Eye Center
1000 Wall Street
Ann Arbor, MI 48105
(734) 763-9142


Dennis I. Bojrab, MD
Jack M. Kartush, MD

Michael J. LaRouere, MD
John J. Zappia, MD

Michigan Ear Institute
27555 Middlebelt Rd
Farmington Hills, MI 48834
PH:: (248) 476-4622

Steven P. Dunn
Fax: (248) 476-7390
http://www.michiganear.com
Specialty: Otology/Ear Nose and Throat

Steven P. Dunn
Michigan Cornea Consultants
29829 Telegraph Rd
Southfield, Michigan 48034
PH: (248) 350-1130
Email: StevenDunn@compuserve.com
Specialty: Cornea Treatment

Howard Feit, M.D.,Ph.D
Department of Neurology
Henry Ford Hospital
2799 West Grand Blvd
Detroit, MI 48202
PH: (313) 876-3577

Susan Fleming, Ph.D.

Oakwood Hospital
Dearborn, MI
Specialty: Swallowing-Disorder Therapy

Michael Nigro, MD
Michigan Institute For Neurological Disorders
28595 Orchard Lake Rd
Farmington Hills, MI 48334
PH: (248) 553-0010
Specialty: Pediatric Neurology
Email: mnigro@med.wayne.edu

Timothy Nostrant, MD
University of Michigan Medical Center
Ann Arbor, MI
PH: (734) 936-4000 or (800)865-1125
Specialty: Gastrointestinal Disorders/Botulism
Treatment of Dysphagia

Jonathan D. Trobe, M.D.
Professor of Opthalmology and Neurology
Kellogg Eye Center
Department of Opthalmology
1000 Wall Street
Ann Arbor, MI 48105-1912
PH: (734) 763-9147
Specialty: Neuro-Opthalmology

DR.Daniel Pieper MD (Neurosurgery)
Park Medical Office Blding
26850 Providence Parkway suite 240
Novi, MI. 48374
phone (248) 440 2162


 
(back to top)

 
 Minnesota  

 
   Doctors  
Michael J. Link, M.D.
Mayo Clinic
Rochester, MN
Ph 507-538-1564

Stephen Harner, MD
Mayo Clinic
Rochester, MN
Specialty: Ear Nose and Throat

 
(back to top)

 
 Mississippi  
 
 Missouri 

 
  Doctors  
James Beneke
Otology/neurootology
3023 N. Ballas Rd
Suite 675 BLDG D
St. Louis MO, 63131
(314) 995-9021

Charles M. Luetje, M. D.

Otologic Center
Otolaryngology/otologyneurotology
3100 Broadway, Suite 509
Kansas City, Missouri 64111-2481
816-531-7373

Paul J. Camarata M. D.
Neurosurgery Group
Neurosurgeon
4400 Broadway, Suite 510
Kansas City, Missouri 64111-3315
816-561-4655

 
(back to top)

 
 Montana  

 
 Nebraska  


     Clinics
  University of Nebraska Medical Center
Neurogenetics Clinics for NF Patients
600 So. 42nd Street
Omaha, NE 68198-5430
Phone: (402) 559-6800
Fax: (402) 559-6688
Contact: G. Bradley Schaefer, MD  (Geneticist)

 (back to top)

 
  Nevada  

 
 New Hampshire  

 
 New Jersey  
 
   Doctors  
Donald A Barone Do
42 E Laurel Rd
Stratford NJ, 08084-1354
http://blog.nj.com/gloucester/2007/03/chairmen_appointed_to_kennedy.html


(back to top)

 
 New Mexico  

 
 New York 

 
   Doctors  
Dr. Michael Schulter, Neurosurgeon
Long Island Jewish Medical Center
300 Community Drive
9 Tower
Manhasset, NY, 11030-3816.
Phone:  516-562-3065
Fax:  516-562-3631

Dr. Kaleb Yohay
Cornell University
Division of Child Neurology
New York Presbyterian Hospital
525 East 68th Street, Box 91
New York, NY 10021
Assistant Professor
Work: 212-746-3278
Fax: 212-746-8137

Kalmon Post, M.D.
Professor & Chair, Neurosurgery
One Gustave L. Levy Place
Box 1136 New York, NY 10029
e-mail: kalmon.post@msnyuhealth.org
Phone: 212-241-0933
Fax: 212-423-9258

Tanvir Choudhri, M.D.
Assistant Professor, Neurosurgery
One Gustave L. Levy Place Box 1136
New York, NY 10029
E-mail: tanvir.choudhri@msnyuhealth.org
Phone: 212-241-8560
Fax: 212-831-3324

Isabelle Germano, M.D.
Associate Professor, Neurosurgery
One Gustave L. Levy Place Box 1136
New York, NY 10029
E-mail: isabelle.germano@msnyuhealth.org
Phone: 212-241-9638
Fax: 212-831-3324

Sujana Chandrasekhar, MD
New York Otology
364 East 69th Street
New York, NY 10021
phone: 212-249-3232
email: sujana.chandrasekhar@mssm.edu
website: www.newyorkotology.com

J. Thomas Roland Jr., MD
Director, Division of Otology and Neurotology
NYU Departments of Otolaryngology and Neurosurgery
530 First Avenue, Suite 3C
New York, NY 10016
Tel: 212-263-5565
Fax: 212-263-2334
email: tom.roland@med.nyu.edu
http://www.med.nyu.edu/people/J.Roland.html

Dr. John Golfinos
TWR 8 8R
530 First Avenue
New York NY 10016
golfij01@popmail.med.nyu.edu
212 263 2950
212 263 1680

Michael B. Sisti, M.D.
Assistant Professor of Neurosurgery
Department of Neurological Surgery
Neurological Institute
710 West 168 Street
New York, New York 10032

Chandranath Seth, MD (Neurosurgeon)
425 W. 59th Street, #4-F
New York, NY 10019
Phone: (212) 523-8500
Fax: (716) 677-6006

 
(back to top)

 
 North Carolina 

 
    Doctors  
Takanori Fukushima, M.D., D.M.Sc.
Carolina Neuroscience Institute
3404 Wake Forest Road, Suite 303
Raleigh NC 27615
Phone:919-876-4327
Fax:919-876-1060
fukushima@carolinaneuroscience.com
http://www.carolinaear.com

Dr. John McElveen, Jr.
Otologist/Neurotologist)
3100 Duraleigh Rd.
Raleigh, NC 27612

Steven S. Glazier, M.D. (NF1 & NF2) Neurosurgeon
Medical Center Blvd.
Winston-Salem, NC 27157
phone: 336-716-9728
fax: 336-716-3065

 
(back to top)

 
 North Dakota  

 
 Ohio  

 
   Doctors    Clinics
E. Antonio Chiocca, MD, PHD
Dardinger Family Professor of Oncologic Neurosurgery
Director of Neurosurgical Services
The Ohio State University Medical Center
James Cancer Hospital and Solove Research Institute
N-1017 Doan Hall
410 W, 10th Avenue
Columbus, OH 43210
Phone: 614-293-5444
Fax: 614-293-4281

Dr. Bruce Cohen
8500 Euclid Ave.
Cleveland, OH 44195
Phone: 1-800-CCF-CARE ext.49182

D. Bradley Welling, MD., Ph.D
.
4118 Cramblett Hall
456 West 10th Avenue
Columbus, OH 43210
Phone: 614-293-8706
http://www.jamesline.com/findadoctor/?DocID=008300&SIDS

Dr. Philip V Theodosopoulos, MD
Mayfield Clinic & Spine Institute
University Medical Arts Building
222 Peidmont Avenue, Suite 3100
Cincinnati, OH 45219
513-475-8668

Dr. Myles Pensak
Medical Arts Building
222 Piedmont Ave., Suite 5200
Cincinnati OH 45219
Phone: (513) 475-8400
Fax: (513) 475-8228

NF CLINIC at the Cleveland Clinic FDN
Dr. David Rothner
Dr. Glen Stevens
S-71
9500 Euclid Ave.
Cleveland, OH 44195-5045
Tel: 216-444-5514
Fax: 216-445-9139
Email: rothned@ccf.org

ADULT & CHILDREN
NF1 & NF2
Multi-disciplinary clinic
Will refer to other specialists
























(back to top)

 
 Oklahoma 

 
   Doctors  
John J., Mulvihill, M.D.
Children's Hospital of Oklahoma
940 NE 13th St
Clinic 2 - Room 262103
Oklahoma City, OK 73104
Tel: 405-271-8685
Fax: 405-271-8697
Email: John-mulvihill@ouhsc.edu

 
(back to top)

 
 Oregon 

 
    Doctors  
John B. Delashaw Jr. MD
Dept of Neurological Surgery
Division of Skull Base Surgery and Neuroncology
3181 SW Jackson Park Road
Portland, Oregon 97201-3098
PH: 503-494-7737 or 800-494-4314
FAX: 503-494-7161
http://www.ohsu.edu/neurosurgery/faculty/jbd.shtml

Sean O. McMenomey, MD, FACS
Dept of Otolaryngology
Head & Neck Surgery & Neurosurgey
Physician's Pavilion, PV01
3181 SW Sam Jackson Park Road
Portland, Oregon 97201-3098
PH: 503-494-8135
FAX: 503-494-4631
mcmenome@ohsu.edu
http://www.ohsu.edu/som-neurosurgery

Dr. Donald Ross

2900 State Street
Medford, OR 97504-8456
(541) 779-1672

 
(back to top)

 
 Pennsylvania  

 
   Doctors    Clinics
Douglas C. Bigelow
University of Pennsylvania
3400 Spruce St.
Philadelphia, PA 19104
Specialty: Ear, Nose and Throat
PH: (215) 662-6970
Fax: (215) 349-5977

William Buchheit
Jefferson University Hospital
1016 Chestnut
Philadelphia, PA 19107
PH: (215) 955-6744

Dade Lunsford
Dept. of Neurological Surgery
University of Pittsburgh Medical Center
PH: 412-647-7744 or 412-647-3685

Dr. Maroon
420 East North Avenue, Suite 302
Pittsburgh, PA 15121-4746
PH: (412)359-6200 or 800-445-2340
FAX-(412)359-6615

Nicholas J. Volpe
51 N. 39th St.
Philadelphia., PA 19104
Specialty: Opthalmology
PH: (215) 662-8042
Fax: (215) 662-0133

Dr. Robert Selker
Specialty: Peacock Radiosurgery
West Penn Hospital
Email: rselker@msn.com

Pittsburgh Ear Associates,
Dr. Douglas Chen and Dr. Moises Arriago

420 EaInsertst North Avenue, Suite 402
Pittsburgh, PA. 15212
PH: (412) 359-6690
Fax: (412) 321-3229

Jack E. Wilberger Jr, M.D.
420 East North Avenue, Suite 302
Pittsburgh, PA 15121-4746
PH: (412)359-6200 or 800-445-2340
FAX-(412)359-6615

Dr. David Andrews - Neurosurgery (Brain)
Jefferson Hospital
909 Walnut Street
Philidelphia, PA 19107
http://www.jefferson.edu/neurosurgery/faculty_profile.cfm?key=dwa101

Dr. Ashwini Sharon - (spine)
Jefferson Hospital
909 Walnut Street
Philadelphia, PA 19107
http://www.jefferson.edu/neurosurgery/faculty_profile.cfm?key=ads106

 NEUROFIBROMATOSIS CLINICS ASSOCIATION
PO Box 14185
Pittsburgh, PA 15239
(412) 795-3029
General Information: info@nfpittsburgh.org
NFCA Social Worker: NFSocialWorker@nfpittsburgh.or























































(back to top)

 
 Rhode Island  

 
      Clinics
   New England Gamma Knife Center
593 Eddy Street, Grosvenor Bldg. #123
Providence, R.I. 02903
Phone: (401) 444-4257
Fax: (401) 444-6126
Contact: Georg Noren, MD, Ph.D.
E-mail: GNoren@Lifespan.org

(back to top)

 
 South Carolina  

 
 South Dakota  

 
   Doctors  
Dr. Laura Davis Keppen
Sanford Children's Specialty Clinic
1305 W. 18th St
PO Box 5039
Sioux Falls, SD 57117
Ph: 800-850-0064
Fax: 605-333-1944

 
(back to top)

 
 Tennesee  

 
   Doctors  
Joseph S. Cheng, MD, MS
Dept of Neurological Surg
Vanderbilt Medical Center
Nashville, TN 37232
Ph:  615-322-7417
Fas:  615-343-5315

Dr. Richard Prass
Nashville Ear, Nose and Throat
2400 Patterson Street, Suite 304
Nashville, TN 37203
Phone: (615) 327-3077
Fax: (615) 327-2941

Dr. George Allen
Neurosurgery,
Vanderbilt Univ. (Nashville)

 
(back to top)

 
 Texas  

 
   Doctors  
Brandon Isaacson, M.D.
Assistant Professor
Department of Otolaryngology-Head & Neck Surgery
University of Texas - Southwestern
5323 Harry Hines Blvd.
Dallas, TX  75390
214-648-3437 (office)
214-648-9122 (fax)
brandon.isaacson@utsouthwestern.edu

Rosa Tang, MD
(Neuro-ophthalmologist)
University of Texas Medical Branch
2476 Bolsver Street, #635
Houston, TX 77005
Phone: (713) 942-2182
Fax: (713) 942-0265 Contact: NF2
E-mail: messenger2020@aol.com

Kevin Charles Morrill, M.D.
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd,
Dallas, Texas 75390-8855
Telephone: 214-648-8791

John Slopis, MD, Dir.
Dept. of Pediatrics, Box 087
1515 Holcombe Blvd Houston, TX. 77030
Phone: (713) 792-2454
(713) 792-6615 (Hubbard)
Fax: (713) 794-4373

Shiao Y. Woo, MD
Professor, Department of Radiology
Residency Program Director - Section of Radiation Oncology
6565 Fannin, DB1-37
Houston, Texas 77030-3498
PH 713/790-2091
Fax: 713/793-1301
Email: shiaow@bcm.tmc.edu

David S. Baskin, MD, FACS
Professor
Departments of Neurosurgery and Anesthesiology
6560 Fannin, Suite 900
Houston, Texas 77030
PH: 713-441-3800
Fax: 713/798-3739

Herman A. Jenkins, MD
Newton J. Coker, MD

SM 1727
One Baylor Plaza
Houston, TX 77030
PH: 713 798 5900

Joseph Agris
Houston, TX
PH: (713) 772-4600

Drs. Stanley Kim and Anant Patel
Gamma Knife Center - St. David's Hospital
919 East 32nd Street
Austin, TX 78705 USA
Phone: 515-867-5167

Herbert P. Edmundson, MD
Houston, TX
Specialty: Neurology

Robert G. Grossman, MD

Scurlock Tower
6560 Fanin
Suite 900
Houston, Texas 77030
Specialty: Neurosurgery
PH: 713-441-3800

Martin L. Lazar, MD

Medical City Dallas Hospital
7777 Forest Lane
Suite B420
Dallas, Texas 75230
Specialty: Neurosurgery
PH: (972) 566-6444
EMAIL: martin.lazar@sbcglobal.net

Andrew G. Lee, MD
Depts of Opthalmology, Neurosurgery and Neurology
6550 Fanin
Suite 1401
Houston, Texas 77030
Specialty: Neuro-Opthalmology
PH: (800) 229-5676 or (713) 798-6100

Lloyd A. Youngblood, MD
Brooks Army Hospital
San Antonio, TX

Jamie Patrinely, MD
Houston, Texas

Dr. Rahul Nath
Director, Texas Nerve and Paralysis Institute
2201 West Holcombe Blvd.
Suite 225
Houston, TX 77030
Plastic surgeon/board certified
Phone: 713-592-9900
e mail: drnath@rnathmedical.com


(back to top)

 
 Utah   

 
   Doctors  
Dr. Clough Shelton
Otolaryngology, Otology / Neurotology
Chief - University of Utah ENT/HNS - Clinic 9
50 North Medical Drive Suite 3C120
Salt Lake City, UT 84132
(801) 587-7678

 
(back to top)

 
 Vermont  

 
 Virginia 

 
  Doctors  
David C Waters, Md
Norfolk, VA
Specialty: Neurosurgery
PH: (757) 625-4455

Dr. L. Matthew Frank
Childrens Hospital
601 Children's Lane
Norfolk , VA 23507
Phone: (757) 668-9920

 
 (back to top)

 
 Washington  

 
     Doctors  
Yoshihiro Yamamoto, M.D.
615 Lilly road, N.E. #220
Olympia, WA 98506
Phone :  360-486-6150
Fax: 360-486-6155
Neurosurgeon
Practices at Providence St. Peters Hospital

 
(back to top)

 
 West Virginia  

 
 Wisconsin  

 
   Doctors  
Jacqueline Diehl
OTR Facial Rehabilitation Specialist
Neuromuscular Retraining Clinic
University of Wisconsin Madison
2710 Marshall Court
Madison, WI 53705
PH: (608)263-2935

 
(back to top)

 
 Wyoming  

 
 (Brazil 

 
Dr. Guilherme Carvalhal Ribas
Neurocirurgia
Hospital Albert Einsten
Av.Albert Einstein, 627 Sala: 1308
Cep: 05651-901 - S�o Paulo � SP � Brasil
Fones: (55 11) 3742-3362/3747-3308
Fax: (55 11) 3744-5063
Bip: 5188-3838 C�d: 2020

Prof. Dr. Pedro Luiz Mangabeira Albernaz
Otorrinolaringologia � Otoneurologia
Professor Titular de Otorrinolaringologia da
Escola Paulista de Medicina � Universidade
Federal de S�o Paulo Av.Brigadeiro Faria Lima,
2639 � Conj. 31
Cep: 01452-902 � S�o Paulo � SP
Fones: (55 11) 3032-2198/9258
Fax: (55 11) 3814-1128

Prof. Dr. Julio Morais
Cirurgia Est�tica e Reparadora / Microcirurgia Reconstrutiva Av.Agami, 236
Cep: 04522-000 � S�o Paulo- SP
Fones: (55 11) 5051-4144/1725
Fax: (55 11) 5052-8702

Eliane Macedo de Mendon�a Borges
Face- Fisioterapia Aplicada ao Corpo e Express�o
Rua Ca�apava, 49 Cj:57
Cep: 01408-010 � S�o Paulo � SP
Fone: (55 11) 3286-0582
Fax: (55 11) 3884-4376

Dr. Eduardo Velutini
Neurocirurgia
P�a Amadeu Amaral, 27 � 7�andar
Paraiso � S�o Paulo - SP
Fone: (55 11) 3262-1266

Dr. Ricardo Ramina
Neurocirurgia
Rua Gon�alves Dias, 713 � Batel
Curitiba � PR
Fones: (55 41) 342-7442/373-8545

Dr. Paulo Henrique Pires de Aguiar
Neurocirurgi�o
Rua Barata Ribeiro 237, Cj 103 - Bela Vista
S�o Paulo / SP
Tel : (11) 3259 1269 / (11) 3259 1266
e-mail : phpaneurocir@aol.com

Dra. Leide Almeida Praxedes
Geneticista
CEPID - Centro de Estudos do Genoma Humano
Rua do Mat�o, Travessa 13 n�mero-106
Cidade Universit�ria - S�o Paulo / SP
Tel : (11) 3091 7966 Ramal-215
Site: http://genoma.ib.usp.br

Prof. Phd.Ed�cio Armbruster de Moraes
Geneticista
e-mail : armbruster@gmx.de
Tel : (11) 3865 6974 

 
(back to top)

 
 (Canada)  

 
Dr. Scott Paquette
Neurosurgeon (specialising in resection
of intra and extra-dural spinal tumors)
Room 704, D6
2733 Heather St.
Vancouver, BC V5Z 3J5
Phone: 604.875.5562
Fax: 604.875.5858

Dr. Ryojo Akagami
Neurosurgeon (specializing in skull base surgery)
Gordon and Leslie Diamond Health Care Centre
8109 - 2775 Laurel Street
DHCC, Vancouver General Hospital
Vancouver, BC, V5Z 1M9
Phone: 604.875.5734
Fax: 604.875.5772

Dr. Brian Westerberg
Otolaryngologist
ENT clinic - Providence 2
St. Paul's Hospital
1081 Burrard St.
Vancouver, BC V6Z 1Y6
Phone: 604.806.8540
Fax: 604.806.8447

 
(back to top)

 
 (Mexico) 

 
Astrid Rasmussen MD, MSc
Department of Neurogenetics and Molecular Biology
Instituto Nacional de Neurolog�a y Neurocirug�a.
Insurgentes Sur 3877, Col. La Fama.
14269 M�xico, D.F. M�xico.
Tel. 5606 3822 ext. 2002.
e-mail: rasmussenastrid@hotmail.com

 
(back to top)